The Boy Who Loved Apples.

Webster_Apples_large_cover

It takes a lot to reduce me to tears. And lately, I’ve been crying all over the place.

The culprit has been a book –  The Boy Who Loved Apples, by Amanda Webster.

This book is one mother’s story of her battle with anorexia – her young son Riche’s anorexia. It’s a reminder that eating disorders do not discriminate, and that they can overpower their victims lives incredibly fast and devastatingly so. And it’s the story of a mother and doctor who once believed all the usual myths about eating disorders and those who get them – until her own son became one of the hundreds of children – as young as 3 years old – who suffer from an eating disorder.

Amanda Webster trained as a doctor, and yet her knowledge and medical expertise were no match for her son’s illness. (Can you imagine just how helpless you would feel, being a doctor and still not able to help your child?) She did her best to give her kids the best childhood that she could – they wanted for nothing – and yet she still found herself engulfed in self blame and searching for what it was she had done ‘wrong’ to cause this. Her story reinforces that nobody is at fault for someone developing an eating disorder, and how wrong it is to automatically blame the parents or the family as a whole. Her son Riche is the last kid we would expect to care about his weight or willingly starve himself – fitting none of the common (highly inaccurate) expectations such as female, appearance obsessed, vain, a brat, etc. He was just 11 years old.

One of the most fascinating parts of this book is reading about the onset of Riche’s anorexia. Since Amanda is telling this story from her point of view, the reader gains a bit of insight into the onset of the illness and how it might be triggered. The first inkling that anything was really wrong, was Riche one day becoming inappropriately worried that he would contract the plague, because his dog had caught a rat and then licked him. This from a boy intelligent and gifted beyond his years, a virtual walking encyclopaedia of knowledge. Very soon after that – days or weeks – it seems that this had developed into OCD-like obsessions – with food, calories, and being ‘contaminated’ by them, and being ‘overweight’ and ‘fat’ being ‘bad’.

Riche’s illness meant that he would walk around an entire playing field so as not to have to step over an empty food wrapper on the ground. It meant he would not enter a room in which food might have been. He tried to strangle himself in a shopping centre lift because someone got in holding food. He would not drink even water – and then when he agreed to, nothing but bottled water with an unbroken seal. He exercised continuously, would not sit down, and washed his hands until they bled. He would not allow anyone close to him for fear of contamination – no hair cuts, no human contact, no HUGS. Not even from his pet dog, or his family. Remember, this is a child.  Completely isolated from anyone who might give him comfort.

It is frightening how fast Riche went from strong and healthy to dangerously ill from dehydration and starvation within a matter of just weeks. The deterioration physically of children with anorexia is often extremely rapid and  dangerous – as they are small to begin with. Amanda found herself fighting to keep Riche alive – and fighting just as huge a battle to keep her son from ending up imprisoned in a hospital, being force-fed, traumatised, and possibly doomed to become a chronic sufferer. As I myself have experienced the trauma of treatment that punishes the sufferer for being sick, I can understand her wanting to spare her son this torment.

Her search leads them to the Bronte Foundation, an offshoot of  the clinic in Melbourne started by a mother whose daughter received treatment at Peggy Claude-Pierre’s Montreaux Clinic in Canada.  (And hello, hello – this is me!!!   (hugging Bronte) :D ) (A follow up documentary, Beyond Bronte, was shot while we were clients there, Riche was also involved.)

I  met Amanda, Riche, and his brother Andy at the Bronte Foundation – the clinic that all of us were attending in 2002 and 2003. At the time, I knew pretty much nothing about their story – only what I saw – and I was very wrapped up in my own problems, too. I knew that it was a horrible time for them, but I had no idea just the extent of the hell they were all living then.

I became very close to Andy, a quiet and shy but brilliant (both brothers were extremely intelligent) kid who attended the day program despite not having anorexia – reading now how hard it was for him to live with his brother starving to death and his family having no time for him is really hard, and I’m touched that our friendship – which was precious to me – was actually special to him too, enough so that Amanda mentions it in her book.  I used to have epic conversations with Andy every day – we were both bookworms, at that time, I was heavily enjoying fantasy fiction and science fiction, and both of us had vivid imaginations – I’ve always cherished those afternoons talking about dinosaurs and outer space and every other thing you wouldn’t expect! I also had fun playing chess mostly with both boys. Both of them were masters at the game despite their age, and in Riche’s case, his proximity from the actual game he was part of. He wouldn’t sit down, and he couldn’t go near people, so he hovered halfway up a set of spiral steps nearby and called out his moves. He won every single time –  his recall and ability to picture the game in his mind must have been astounding – especially as he was in the grips of starvation at the time.

I’d always wondered what became of the boys – and was SO overjoyed to hear that they are now well and happy. I have heard that Riche is now studying at university, something scientific I believe.

The reason for my tears was both grief, knowing what they were about to go through, and joy, to know that Riche had not only survived but was doing well today. Also, so much was brought back from all those years ago. My own time at the clinic was both wonderful and awful – the paradox of trying to treat eating disorders was alive and well there – that what might work brilliantly for one person, could actually make things worse for another. All of us are so different and so there is no one treatment that works for all. The philosophy at the clinic was based on the Confirmed Negativity Condition theory that Peggy Claude-Pierre saw as being a constant in all sufferers. I do relate to CNC, but it could be called a thousand other things too – many of the traits are behaviours identified in CBT for example. They meant well, and a lot of clients went on to totally recover, but I was one of those who didn’t respond well, and perhaps I wasn’t ready at that point in time, to properly use their help. They also were not equipped to help with much beyond the actual ED – my trauma and abuse problems left them at a loss as to how to help me. But apart from this last two years, the 18 months I was a client there were the most ‘well’ of the whole 15 years of being constantly in and out of hospital. I was truly privileged to have the oppotunity to attend – I was the guest of a lady who bought the house for the clinic to set up in, after her daughter died from anorexia. I was one of her daughter’s friends and she insisted that I too, would go there. She was also the amazing, wonderful person who brought a little kitten into my life – Shalimar :)

I feel that The Boy Who Loved Apples is a valuable resource due to the insight it gives the reader into eating disorders and the battle it wages with the mind. It demonstrates that it’s not just adolescent girls who are appearance-obsessed who suffer, that it’s not necessarily anyone’s fault, and happy kids from happy families can get it. It illustrates how people with eating disorders face so many dead ends in their fight to just get help and that even medical professionals can be dangerously unfamiliar with them – something that can be fatal.

The best part about this book is that we know Riche has gotten better – completely. I’m really grateful to Amanda for sharing their story, and I wish them only the very best in everything. It’s also a reminder that people CAN get better from an eating disorder.

I highly recommend this book.

Have  you ever wondered where someone you met who was very unwell or struggling at that time ended up and how they are doing? Have you ever found out? 

(Image source)

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15 thoughts on “The Boy Who Loved Apples.

  1. You write the best book reviews. I just ordered this on Amazon =)

    You mention the helplessness a parent who is also an MD may feel when facing an ED – I have witnessed this first-hand. I work at a pediatrician’s office, and one of our patients is the teenage daughter of an MD – an ER doctor in fact. She is anorexic and her disease is sapping him of his confidence, his strength…everything. It’s so sad to witness.

    • Fiona says:

      Hi Sable! Thank you!!! I was actually considering NOT doing a book review, because I was worried it would be too boring… so I’m really glad you enjoyed it.
      I’ve met quite a number of people with ED with parents who are doctors, even both parents! I’ve actually wondered what the link is there, or if it’s just one of those coincidential things.
      It does go to show just how strong the illness is. xxI hope so much that your patient turns a corner and gets through this, it would be horrible and heart breaking for you to witness too – do you find having been through it yourself makes it harder for you to handle the patients who have ed? xx

  2. You know I truly believe there is hope for you too, to fully recover because I believe in miracles and I know someone who is in that business…I just wanted you to know you’re situation is not hopeless. I know you believe it is.
    much love xo

    • Fiona says:

      Thank you. It’s been a really good reminder to me that nobody’s situation is ever hopeless – ever. We don’t know what’s in our futures at all and unless we have a crystal ball, we can’t write ourselves off! To believe that recovery isn’t possible is the same as not even giving ourselves a chance really, and it’s giving ourselves an excuse to not try our hardest. Thank you for believing in me – you know someone in the Bronte foundation do you mean? Wow that’s amazing? Small world! lots of love, hope you are okay xoxox

  3. I guess I wasn’t aware that ED happened to little children…What a struggle he and his family had as I would suppose most families do …but to hear he is well now is wonderful. And you have come so far and will one day also be ‘completely’ well …I know it’s hard for you to see that right now and yet I believe you have hope that it can happen…Diane

    • Fiona says:

      It’s shocking that it does happen to kids! I think that on one hand, it’s happening to kids more these days than it used to, but on the other hand I wonder if it’s the same reason that people in first world countries and marginalised cultures were thought to not get eds – they didn’t have access to health services in order to be diagnosed but they were still there in pretty similar numbers to in the US and UK and AUS.
      Thank you for believing in me and for your hope. For reminding me it’s possible xx

  4. Greta says:

    I so want to read this book! As Sable has mentioned – you are good at doing reviews. I had friends at school who struggled with eds. After the graduation we entered different universities, different towns, countries – we lost each other. Later on one of them had died from anorexia. The other one survived and took years of treatment to get well and to be able to have kids. She has two boys but we are not close – she asked me not to be as it’s difficult for her to see me being slim, while she’s not anymore, so the disease is there. I wonder if mine will always be there too…
    I’m very thankful for this beautiful post. Guess who cried too? ;)
    xoxo

    • Fiona says:

      Hi Greta! Thank you :) I hope you can read it! You could probably order it on Amazon.. you can!!!! Right here.
      I’m sorry so sorry that your friends suffered too, one died, and one still haunted by it – I’m glad she’s managed to have children though – it sounds like she’s trying to live despite it.
      It’s painful when friends cut you off because it’s too hard for them. it’s happened to me a few times too. I hope so much that one day, she gets to a point where she can come back to you without fear of your ED .. OR — you get to be ED free and she has no reason to do that any more! Although we cannot do that in our entire lives – it’s impossible to cut out everyone who is thin or reminds us of something or triggers us – it’s impossible. You are right, it’s a sign she’s still struggling within.
      Well, guess what Greta? The little boy in the book doesn’t have anorexia any more. Not one bit. So there is hope for us, too. Never give up.
      Oh no, I made you cry again! At least we aren’t alone. You are such a tender heart :) <3 xoxox

      • Greta says:

        I’ve ordered it from elsewhere… In europe we have our secret sources to get books for less than from amazon. :)
        Losing friends sucks. No matter what the circumstances are. Even the internet ones…
        And I hope so much, that we can BE free… hope and doubt at the same time… I wish the Guy up there will answer my prayers one day ;)

        • Fiona says:

          I think he will – I think maybe there is a reason why we are going through this. And it’s different for all of us. Maybe there is something we are going to learn, someone in particular to meet to touch our lives and us touch theirs, to warrant it not being our time to heal just yet. I do believe the time will come for us to be free too.
          Secret source! Lucky thing, I’m jealous! :D

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