Was It My Choice to have an Eating Disorder?

croc eyes

I don’t agree that it’s a choice to have an eating disorder. Nobody asked the little four year old me if I wanted one. Nobody gave me a choice. I didn’t want to hide my food or refuse to drink. I was hungry, and I liked to eat. I’d never thought about my body in terms other than “This is me playing!” and that it could wear dress up costumes, could run, jump, dance… I didn’t know anything about eating disorders or weight loss. I’d never even set eyes on a glossy magazine. I idolised my mother and father, and wanted only to be the best ‘good little girl’ I could be so they would be happy with me and love me more, so it wasn’t about having power over them or defying them, either.

As I grew older, still completely clueless about eating disorders, still without a care when it came to weight, I still never had a choice about the eating disorder. There was this thing that just was, in my mind. It was just there, as though it was born with me when I was, and grew as I grew, until it reached a point where I could no longer avoid being influenced by it. This thing told me, no, demanded that I not eat, that I exercise more. I didn’t even really hear the demands at first – later it was like something screaming inside my head. There never was a choice not to do those things – they were what had to be done, and there were no other options open to me. Not a single one.

And so, I obeyed it. It just had to be done, and I just did it. Hunger was unpleasant, pain was unpleasant, but disobeying this thing, that was far worse.

Have you ever felt like you are so trapped that you could thrash and beat at the walls, scream your head off, do everything you could to change your situation and you would be simply wasting your energy and breath? Known that for certain – without a doubt? That was what it was for me. And if I did try to beat it, the consequences always dissuaded me from trying again.

It wasn’t until I was at least 18 years old that I even began to learn about what eating disorders were, or accept that I might have one. You find it very hard to believe you have a disorder when you are just doing something you HAVE to do, that you have no choice not to do. A disorder should go against the grain. A disorder should cause more distress than it alleviates – this was the other way around at that time. To not obey caused instant, lasting, intense distress. To listen, to fulfil the demands on me – I found that soothing. Calming. It made me feel invincible. It reminded me that I was strong enough to withstand the hurt being meted out by the people in my life at that time, because I was used to pain. I thrived on pain. And pain made me stronger. This proved it to me, because my dancing went from strength to strength the more I exercised, and the more I exercised, the less time I had for eating. To feel I was dancing better left me on a high, along with the cognitive and physical effects of starvation, I was in a constant giddy, light headed state of ‘not being there’.

And I didn’t want to be here, there, or anywhere at that time. I’d been hurt so much, and the hurting never stopped. Every where I turned, I was wounded. Like a little creature seeking to just survive, I crawled away to hide best that I could while still being there amongst my abusers. I crawled away inside myself. They saw my shell, they no longer saw me.

 

Indeed, when I left that hell that I grew up in, not a single member of my family actually knew who I was. Not a single one of them knew the real Fiona, only the outer carcass, only the robot who simply humoured their demands and acquiesced to their ways, because it wasn’t worth the extra fighting to do otherwise. Who learnt to never show them what actually mattered to her, lest it became a target too, and used against her.

In all these years, I never chose to have the eating disorder. Not once did I consciously choose to lose weight. I never chose to restrict my eating. I never chose to not allow myself to eat or to drink. I never chose to force myself to overexercise. I did not have a choice at all – ever. Those things were simply things that were as natural and unconscious to me as breathing, as my heart beating. We don’t think about and choose every breath we take or every beat of our hearts. And yet, we breathe. Our hearts beat. The eating disorder ate away at me from the inside out. It was never something I thought about, wanted, or chose.

There are six year old children needing treatment for anorexia in growing numbers. Eight year olds. Nine year olds. Ask a six year old why they want to lose weight? Will they tell you they want to be a model, or on the cover of the latest Vogue magazine? Will they tell you that it helps them to cope with an uncertain world, or with fear or pain, or that it makes them feel strong and in control? That they do it to manipulate people around them?

I can pretty much promise you they will say none of those things. Because they never chose to have their eating disorders either. For them, as it was for me, the eating disorder was something that they were born with, a pre-existing predisposition, determined by genetics, not by them. And it lies there, waiting, under the surface. It lies there like a crocodile under the skin of a silent lake, only its eyes above water, waiting for something tasty and alive to wander into it’s path. A menacing, hidden danger, no less a threat for its temporary invisibility. And at some point, life conspired to throw them into a set of conditions that triggered off that lurking monster, brought it out of hiding and into full battle.

All that waiting made for a very hungry monster indeed.

At about 18, all that had happened – and was happening still to me – came to tipping point. I simply was no longer able to stand up against the tide, as I had fought so hard to do all those years. It knocked me down like I was nothing at all, swept me over the edge, and then I was falling. Falling into anorexia.

And I fell hard.

It was never a choice.

Years later, when I finally accepted my anorexia, accepted the bulimia that had come with it, accepted that I needed help, was out of control, was dying – then it was my choice. I had an army on my side to fight it, and it was my choice whether to join them, or to fight against them as enemies. And too many times, I did see them as foes. It took years for me to realise they came for me, not against.

I never had a choice about having an eating disorder.

But I do have a choice to fight it.

Did you choose to have an eating disorder? Or another illness or disorder?

** I will likely not be around online much for the next few days so please excuse late replies to your comments, I’ll get back to you as soon as I can – thank you for reading :)

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27 thoughts on “Was It My Choice to have an Eating Disorder?

  1. I most definitely didn’t choose my eating disorder. I grew up with a weight-obsessed mother who thought that anything over 126lb (9 stone) was overweight, and she was always on some crazy fad diet and trying out different exercise regimes. I didn’t want my mother to ever think I was fat.

    I was bullied at school. Badly. I began to punish myself through various means, and denying myself food was one such method. If I could stay thin, then maybe nobody would bully me any more.

    I know all too well – and have felt all too recently – that all-consuming physical agony of being starving. You want to eat, but you hurt too much and feel too sick. This is when my husband has to coax me to eat even a mouthful of soup and build it up from there.

    I don’t feel that I will ever get off this roller-coaster. Sometimes my appetite is normal and healthy and other times I can’t even look at food. I love cooking shows, but certain other shows concerning diet and weight distress me when I’m on the downward spiral.

    I certainly did not choose to be anorexic. People who believe that we choose this for ourselves are fools.

    • Fiona says:

      Hello Missus Tribble :) I’ve been thinking of you.
      I am really sorry that your mother did that to you. It meant you really didn’t have a chance at all – even if eating disorders weren’t something that is predisposed you would have had a screwed up relationship with food and weight any way.
      I’m so sorry you were bullied too. It’s something that affects us forever. People can say, they are only words, but they don’t realise that words are SO wounding and that it’s more than that, it’s being treated in a way that kills your spirit slowly over a long time of constant battering. You end up believing them, in the end. I did. I’m not surprised you did.
      I do know it’s possible to get off the roller coaster – that’s one of the many blessings of having friends who HAVE somehow managed to. But it’s really hard to believe it can happen to us when we are so stuck there.
      Please, whatever happens, hang on to hope. Sometimes it’s all we have, but I think it’s the most important thing we can have. xxx

  2. Angela Herd says:

    Hi darling. I totally can understand what you mean about feeling like the eating disorder was just…there…under the surface, inside, and waiting for the right opportunity to come out. I do believe the same was true for me. In that it came more from the INSIDE than from anything OUTSIDE in my environment.
    I don’t think that’s necessarily true for everyone. I think there are definitely girls out there who, say, begin a diet in order to look fashionably slim, all their peers are dieting, etc etc, and then the starvation effects on the brain perpetuate the problem until it gets out of control. But like anything, I think it depends who you are, and some people’s personalities make them more susceptible to such external influences. But personally, yes, like you, i feel like my ED was also a ‘crouching tiger’.
    What you write here: “A disorder should cause more distress than it alleviates – this was the other way around at that time. To not obey caused instant, lasting, intense distress. To listen, to fulfil the demands on me – I found that soothing. Calming.” I can relate, though perhaps not quite in the same way as you. For me, once i had the disorder, this was one of the big things that perpetuated it (regardless of whatever the fuck caused it in the first place). It was far far more painful to eat than and suffer the torturous consequences inside my own head for doing so, than it was to starve myself to death! Its absolutely counter-intuitive, eating is such a ‘natural’ and necessary thing to do, its an instinct, and yet…for people with eating disorders as serious as ours, that very survival instinct tortures us.
    Off to bed, may be able to write more later !! Love you sweetheart. xoxoxox

    • Fiona says:

      Hello my sweet sis!
      You are right about it depending on people’s personalities. I think my personality is wired towards going to extremes, it’s just me. I definitely from knowing you believe you are an extremist and perfectionist as just who you ARE.
      Yes, that’s part of why I think they are so hard to accept – we are trying to tell ourselves we have a disorder, but this so called disorder makes us feel better or at least not so bad – whereas ‘disorders’ usually do the opposite.
      I miss that soothing calming feeling a lot. I have to keep reminding myself it’s a lie. I hope you always can too, you are truly inspiring because you have done and are doing what I fight so hard to do. If you can, I can. Love you xxx

  3. paulaacton says:

    i had a brief episode of bulimia in my teens and again when I had post natal depression it was not a choice in my case it seemed to be that when I was stressed my body simply refused to keep food in, I know I was luck in that once I dealt with the stress the eating problems resolved themselves though not overnight

  4. It is so true that people with disorders or mental illness do not choose to have their problem…it just happens And you’re right when you say that you can CHOOSE to fight it when it does happen…and fight and fight and fight sometimes…It doesn’t often happen overnight but with concerted and continued effort it can get better or be resolved completely…I know…because it happened for me….Diane

    • Fiona says:

      It did, and that’s so inspiring, Diane. It wasn’t easy for you and it was a fight that went on and on and on – indeed it’s a fight you are still fighting every moment of every day. But it’s a fight worth fighting and one in which you have the Lord always at your back. With God for us, how can we lose? xx

  5. A four-year-old doesn’t have a brain?

  6. This made so much sense. I don’t think I chose to have PTSD.

  7. Brittany says:

    I have never had an eating disorder, so for that I cannot completely relate. I along with many other young girls can relate to the voices in my head telling me to be thinner and not eat that cookie. They are overwhelming and loud. I do believe that people some people don’t choose to have these mindsets and it can be very difficult psychologically to deal with them.

    I am so glad you found your army and have been fighting your way through this, I know it cannot be easy! I do know the feeling of being trapped and thrashing at the walls for something. If I could eliminate one feeling this would be it. It’s unbearable.

    Completely off topic I just wanted to thank you for your amazing comment on my post about life. It was extremely detailed and insightful and I very much appreciated it.

    • Fiona says:

      So true!! Sometimes what’s going on in our minds is just too loud and overwhelming for us to not listen to it.
      I’m glad my comment was helpful!! I love that through our blogs, we can reach out to and support people we relate to in some way and share what we found helpful! I’ve found a lot of people’s comments here helpful for myself, too :)

  8. The Hook says:

    You were given the circumstances, but how you dealt with them was your choice. Well done. Keep up the good fight.

  9. justme says:

    Really interesting post. My heart goes out to you that you were so very ill and so unhappy from such a young age. It is extremely clear that you never had a choice. My ‘story’ feels somewhat different… I certainly did not have such an awful childhood as you, I was simply anxious, tended towards low moods and had minor stress factors at home and school coupled with a genetic tendency to mental illness. When this crossed over into actual depression I don’t know but sometime in my teens probably.

    Subsequent life events and terrible self-esteem worsened everything and I was on anti-depressants, self-harming and comfort/binge-eating in an attempt to cope by the time I was at uni. Despite also seeing a counsellor my bleakness continued and the inevitable weight gain didn’t help.

    So, I turned to bulimia. This was immediately after my 21st birthday – I was definitely not a child, I was fully-aware of what EDs were, their consequences etc. And bingo, it worked better than anything as similtaneously a method of self-soothing, self-punishment, emotional release and something to obsess over other than my general failure at life (had dropped out of uni, was ‘fat’, ugly, social reject, useless etc etc…

    It worked better than the self-harm, better than the comfort eating, better than anything. So was it a choice? In some ways I would have to say yes. Over 8 years later I am still stuck in this hell hole and wish more than anything I could turn the clock back and grab myself by the shoulders and shake some sense into myself, give past-me an insight into where it would lead. Would it change things? I honestly don’t know.

    • Fiona says:

      Hi JustMe,
      I’m so sorry that things went the way they did for you. I do believe that it’s different for us all. It’s well known that not everyone with an ED has had a traumatic past and I think it’s established now that there is a genetic factor in people getting EDs (and other mental illnesses too).
      It sounds like you were going to struggle with mental illness no matter what path your actual life took. I feel the same way. I can look back and think “What if, what if..” but I don’t think my life being better would have stopped me getting an ED, neither do I think it being hard caused it. I think it was a trigger, and everything does add up to create the conditions in which ED can thrive – but there are plenty of people who have traumatic lives out there who don’t get EDs.
      I am so sorry that you are suffering so much. Please don’t ever give up. I often wish that I could go back and do things again with what I know now – shake myself indeed! But would it change things? I honestly don’t know either.
      Hang onto the fact that you were doing the best you could at the time with what you had and knew. I hope that you can grow more gentle with yourself – because it wasn’t you being ‘stupid’ or ‘bad’ when you came this path. You were trying to cope the best you could.
      I still don’t think it’s a choice. It sounds to me like it was a survival instinct, that as much as it helped you survive through ‘then’, has pushed you into a hellish existence now – that if only you could just ‘choose’ to be free of it, you would be.
      Hoping and praying you will get there some day – you can. xx

  10. Crumble says:

    “People can say, they are only words, but they don’t realise that words are SO wounding and that it’s more than that, it’s being treated in a way that kills your spirit slowly over a long time of constant battering.”

    Fiona, you were praising someone on their blog, and then slamming them on a private website. You can not get anymore two faced.

    I hope you are ashamed of yourself. You seriously need to get a lot of help. Please, please get the help you so desperatly need.

    • Fiona says:

      Hi Crumble,
      I never slammed LT – I simply said what I felt. And I’m sorry that I did that. I’m human – as we all are (I hope.) I have feelings too. And in real life nobody is ever all sweetness and light 100% of the time. I get frustrated as much as anyone else gets frustrated.

      Admitting that you get frustrated with someone and that you do at times wonder if they are really who they say they are is not bullying. It’s not being two faced. And GOMI is far from private. I am also far from alone in these thoughts.

      I have my own issues – deeply, yes. And I am getting help. I need to unsubscribe from LT because believe me, when you have been working hard on your own abuse issues, working hard on getting your life back together, then you read someone constantly saying that they will NEVER be ‘okay’, never not be totally broken – you want to shake them and say “Don’t ruin your own chances by declaring that because it’s not TRUE. Try and have a little hope” – arrgh. I guess LT echoes what I’m constantly scared of – that I will NEVER heal, and that I will never not be broken. And that terrifies me. But to be honest? LT is actually much more functional in her everyday life (from what I can see from reading) than I am, so for me to be frustrated at her for refusing to give herself a chance is a bit back to front. But at least I AM giving myself a chance. This so called ‘whining about my ED’ blog is predominantly positive. I am not constantly saying that I will NEVER get better because of whatever.
      I’m fighting hard. Which is exhausting, and yes, facing up to the stuff instead of doing my damndest to avoid it and hurt myself more. I am NOT all positive and happy and fine – I struggle. I am in pain every moment of every day – another thing that drew me to LT. I feel that excruciating pain. I’m still battling my demons ALL The time. BUT I fight to not feed that negativity. I fight to overcome it. Because if we don’t, we don’t have a chance. Most of the time reading LT’s blogs, I feel like she’s given up.

      I guess that comparing our progress is the biggest mistake of all that I’ve made – and it’s a hard lesson to learn. Because it’s true – never compare, it invalidates. We are completely different.

      Which brings me to I think the core thing that’s gotten to me and caused me to doubt LT’s sincerity – all this time, reading her blogs and her commenter’s comments – I have felt it totally invalidates all that I have been through. In fact it invalidates what many other people have been through. I have at one stage – not sure when because I’m not so obsessed that I keep track of every comment I make – empathised with not having a mother who loved you, but being rejected. And the reply from one of her commenters? That I didn’t know what I was talking about because I HAD a mother and I wasn’t a foster kid. So even though my mother abused me horribly, it ‘didn’t count’ because I had a mother and foster kids don’t. You can probably imagine how that feels.

      I am disgusted at myself for not keeping what I thought private – I sincerely meant every single comment I’ve ever posted anywhere – they were what I truly felt at the time. Very glad that LT is finally standing up for herself. But I’m also pretty burned that LT and one or two commenters there are again manipulating all her ‘blog crew’, painting me as a ‘nasty bullying bitch’ when that’s far from the truth.

      The internet is a sharing community. I’ve faced extreme criticism for putting my truth out there. LT will face it too. Perhaps she should not blog, or should blog privately, if she isn’t prepared to take the bad with the good – because you can’t tell people to stop reading. You can’t tell them to stop thinking what they think. And you can’t call someone nasty for being honest about their feelings. So I got frustrated, so I started to doubt her authenticity – that doesn’t make me a bitch. It makes me honest, and it makes me unwilling to enable someone giving up on herself.

      What you are doing, peppering my own blog with comments about how nasty I am – IS actually nasty. It IS attacking behaviour. Maybe you need to step back and let LT fight her own ‘battles’ (even though this is not a battle – it’s very one sided because I’m not ‘fighting’) because it’s obvious you have very poor boundaries.
      If you continue to comment in this way, I will have to add you to my block list. Thanks.

  11. Crumble says:

    Often people who are bullied feel the need to bully others – is this why you do what you do? What can you do to change this? Is your behavior helpful or harmful?

I'd love to hear what you think :)

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