Setbacks and Steps Forward.

I seem to be posting less and less often these days.

That can be a good thing – if it is because I’m out there living life. Or it can be not so good – meaning I’ve withdrawn from the world.

Things haven’t been so good lately in some ways. The nature of an eating disorder is that we have so many ups and downs. Being co-morbid with depression, anxiety and other related conditions further complicates things. I know I’m not alone there.

I find life very overwhelming and that’s caused me to cut back on many of the things I had achieved. I’ve stopped going to ballet and volunteer work, and rarely leave home unless it’s to go to the shops or to therapy. And when I go to the shops, it will be with a worker. Social phobia is pretty strong these days.

I’m actually typing this from a computer in a public library – that’s a pretty unusual thing for me. (It’s also frustrating – this computer has the grrrrr-iest keyboard lol).  I’ve just had a counselling session and decided to stop in at the library instead of going straight home. I want to go home!! Too many people here. But here I am :)

The good news for me is that I have started counselling. I only have a few sessions left with the psychologist before my 10 sessions per year is up – and I was panicked about what to do for support after that. There was a not-for-profit organisation nearby for women with eating issues that I had totally overlooked – they have free spots for counselling. So here I am.

Some things are meant to happen. I know I will never overcome the ED until I’ve dealt with the lifetime of trauma. I still haven’t had much chance to work on that stuff with the psychologist because most of my sessions with her have been used up just learning and working on coping skills – she won’t work on trauma unless she knows I can keep myself safe.

But the counsellor I’m seeing now is very experienced with trauma work. I’d always wondered where people went to do all the therapies I’ve only read about online – art therapy, sand play, movement therapy etc. Well, she does them all! Not just that, but she ‘gets’ me – and she seems to appeal to my creative side that has for so long been suppressed. She’s going to help me get back into the art and writing that I used to do so much. And, in  bizarre coincidence, she has been to my dance school with an art class to draw the dancers in class.. which is something she might look at exploring with me, as well as helping me get back into dancing again. Volunteer work is on the back burner for now – I tried to do too much at once and ended up totally overwhelmed. Now we are going to do one thing at a time.

I can definitely see how drawing dancers as they move would be helpful. You can’t be a perfectionist when your subject is moving! And you can’t help but notice that bodies come in all shapes and sizes. They are tall, short, fat, thin, slender, chubby. And it’s okay. They are all okay.

I remember when I was a dancer, how it was what my body was capable of that mattered to me. Not what I looked like. I strived to make it as strong as I could. Practised and exercised continuously. I had no idea I had anorexia. I didn’t want to be skinny. I actually turned my nose up at skinny, thought the girls who were always on diets or throwing up were rather pathetic. I was devastated when I finally had to admit I had an eating disorder. Devastated and blindsided. I still find it hard to fathom.

‘Crying Ballerina’ Gavin Penn

More and more evidence is emerging through studies and research that eating disorders are not actually about food and weight at all. Simply those are the way we have chosen to express the illness.

An extremely fascinating book that I may have mentioned in a previous post was Ethan Watters’ “Crazy Like Us: The Globalization of the American Psyche”. One of the case studies in this book focussed on Anorexia in Hong Kong in the 1980′s. At that time, Western culture had not yet influenced the Chinese culture as much as it has now – so it wasn’t common for Chinese girls to be exposed to the Western idea of fashion and our body pressures. Yet Chinese girls still got anorexia – just like us. The difference was, they didn’t know why they were starving. They expressed that they wanted to eat, didn’t want to be too thin, etc – and yet they could not eat to save their lives. There are similar findings in third world countries, places of famine and war, and cultures that still are far removed from our own and don’t place as much value on being slim  as we do.

Another interesting thing Watters said was that until Karen Carpenter’s death, eating disorders had a very low profile – but after her death they started ‘coming out of the woodwork’. It seemed to him that more people identified with her, identified with having an eating disorder – and spoke up about it, sought help. This also could have been helped along by the fact that people suddenly were made much more aware of eating disorders so were suddenly realising there were family members or friends who were struggling. But what interests me, is that Watters believes that how we express our illness changes depending on what is at the forefront of our cultural awareness. Because of the sudden high profile of anorexia, he surmised, people started to express that they were unwell through using those behaviours. As Western culture started to affect Asia more, Asian anorexics started to become more focussed on their weight and on appearance, replacing the former unexplained starvation behaviour. They still had anorexia – they simply now believed it was because they needed to lose weight to be acceptable and fashionable.

Another clue that eating disorders aren’t about trying to be slim or like a fashion model are that six and seven year olds are being diagnosed with it. Most of these kids have never flipped through a fashion magazine in their lives. The extent of their wanting to be fashionable is probably dressing up as a fairy or in their mum’s high heels and make up. The body pressure isn’t there. Neither is the bitchy fashionista culture that older girls and women must contend with. And yet – they too, starve themselves to the point of being in danger of death.

We have a long way to go with researching and learning about eating disorders and their causes, and even further in how to treat them and hopefully some day cure them. And I have a lot more that I want to write about – but I must go. I hope this has been interesting!

I hope everyone is going well, keeping up the good fight. You are a pretty awesome bunch of people :)

Thank you for reading.

(Image Sources: 1, 2)

Edit- Thank you to Sooz – for pointing out that I have forgotten basic geography. Hong Kong is not in Japan! Sorry *blush* Now I need to go hide, I’m so embarrassed ;)

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29 thoughts on “Setbacks and Steps Forward.

  1. Big ((hugs)) i’m sad to hear that you’re not doing well, but it’s good news that you are going to get some continued help and maybe start to paint again??!!

    there is a lot we have to learn about ED’s I remember Karen Carpenter and her story as a kid. I actually watched her story recently on you tube.

    I like her music. too.

    • Fiona says:

      Karen was before my time, but I still remember her from my childhood, and from seeing vidoes of her story wen I was first in hospital. Her story is haunting and heartbreaking, isn’t it? I hope we learn more and become less ignorant as a society. We still have a long way to go but we are heading in the right direction I think.
      Thank you for your wishes – I need to check in on you, I’ve been thinking of you lots. Love and hugs xx

  2. Gel says:

    Hi Fi,
    This is very interesting to me. As you probably know my eating disorder didn’t kick in until I was 30 and then it has never been about trying to be thin. So I found it interesting what Watters has to say. This part caught my attention: “Watters believes that how we express our illness changes depending on what is at the forefront of our cultural awareness.” I was influenced by the 1960′s where attention was not on the media but on nature and being natural…so for my sub culture of experience was that it was cool to eat health foods and for women to not wear make-up or shave (gasp!). The culture around me supported an emphasis on ‘health foods’ and special ‘healthy’ diets to not only be healthy but as a way to elevate yourself spiritually. (Ie vegetarianism as an ethical or moral activism). OOps…I’m going on too much…I won’t go on about this in your comment section….I just wanted to let you know that this is an interesting topic to me. Thank you.

    So is your therapist going to draw you dancing or is she wanting you to draw other people who are dancing? What a neat idea…But the best part is hearing that you get to work with a therapist that you really connect with. GREAT NEWS! I’m so glad you wrote this post and it’s good to hear from you. Much love to you dear!

    • Fiona says:

      I’m so glad that this is interesting and relevant for you, Gel! Sometimes it is so hard to find anything that we relate to in the literature and I know that makes me wonder if I don’t know myself, or am wrong about myself. I don’t relate to a lot that’s been written in that I don’t fit many of the ‘criteria’ that society stereotypes us into, but to have had that pushed at me time and again in hospital, had me start to wonder if I really did want to be skinny, really was just a brat, and didn’t know my own self.

      My therapist is going to help me get the confidence back to go to dancing – through helping me explore the arts, I think, and just through helping me address the issues that come up. I have a great deal of trouble not being suddenly 15 years old again every time I even think of going – and that’s very difficult. The people there are lovely, have been so warm and welcoming, but I’m not even in the same place as them but instead in the past haunted by what happened. So she’s going to help me cope with that. I hope so much to go back as soon as I can.

      Thank you so much for your continued support and insights. I’ve missed keeping up with your blog and will try and catch up asap. Love and hugs xxx

  3. mundanebrain says:

    I’m happy to hear you’re trying to nip this in the butt Fi. And how lovely you found a lovely therapist. I hope you feel a little better soon, make sure to fight it like a powerwoman!! xx

    (PS; HongKong isnt in Japan ;) )

    • iamnotshe says:

      Of Fiona. I get this; totally. EVERYONE in the ED world should read your blog! You are fighting so valiantly for your life! I feel that you try SO hard that the Eating Disorder fights BACK just as hard! I had a lovely therapist who used to tell me the same thing. She was right, to a certain extent. When I simply “let myself off the hook” a little, at least i wasn’t constantly throttling myself for “doing it [recovery] wrong”. As we all know, there’s no WRONG. It is what it is: And as you so miraculously describe it IS a beast. There’s no amount of explanation or narration that can describe the hell that ED’s bring upon us. It’s a killer, literally.

      You are the warrior. I hope you can give yourself a little break.

      Oh, and living life. WOW! There are loads of “normal people” HA HA HA!!! I should say crazy people who “believe” they’re normal, things to deal with! It takes a lot out of a person to live with those nutty folks who could use a little therapy themselves!!! Amen and BIG love sister!!! Fight on, but give yourself a long day of snuggling with Shal! xoxox

      • Fiona says:

        I am so grateful to have you as a blogging sis, Mel, and so glad to see you back again – it’s been a strangely empty place without you. I can’t wait to read your posts!! Ten is amazing :)
        Thank you for all your encouragement and support. And inspiration – you remind me it’s possible. To never give up. It’s not over til WE declare it’s over.
        It is a beast, yes. Every time I think it’s not as bad as I made it out to be, some reminder pops up to leet me know in no uncertain terms just how powerful this thing is. A monster.
        Love and hugs and snuggles to you xxx

    • Fiona says:

      Hahaha I cannot believe I got that wrong! I was so embarrassed – and so thankful to you for pointing it out. ;)
      Thank you for your thoughts. I’m sorry I’ve been elusive lately. But I’ve been around, and I’ve been mentally hugging you a LOT. xx

  4. iamnotshe says:

    Oh, and i’ve started about 10 blog posts! I hope one or two of them is relevant: AT ALL!!!!

  5. ((((hugs sweetie)))) Life is not easy and then you are dealing with a disorder on top of it all. I have been a little upside down in my world trying to learn to move, walk and balance again from a back injury last May – doing well but I have my moments through the recovery process, good and bad. Keep on keeping on – take care of yourself – take the time you need:)

    • Fiona says:

      I’m really sorry you were hurt – but glad you are fighting back. It is hard to build up strength and come back from injury isn’t it, especially back injury. I’m thinking of you and hoping it only gets better. One step at a time – and thank you xx

  6. ziggy40 says:

    Dear Fi,
    Thank you for all the interesting research, I wonder if it at all makes you sad?, I ask as I remember treatment models,’if you can call it treatment’ from the late 1990′s, I know I was so judged for behavior that i was choosing, now they are acknowledging that it is not a choice, I have long time believed my illness was about just punishing myself for the ‘bad’ person inside, I also NEVER looked at any model and wanted ‘to be thin and what ever’. Sorry, of on a tangent , I’m glad your therapist has a arrange of therapies, I’m doing lots of art at the moment it seems to help with some of the strong painful emotions. I wish you well, hoping you feel better soon, I know you are a fighter, wanted to remind you , there are lots of people on your side, if you need a break,rest your shoulders on those around you. You are ENOUGH,YOU are a beautiful soul. I realize your ED voice will have a fit at this, however I personally am uninterested in your neg. voice’s opinion. I AM giving my own opinion…..sending love, compassion, hugs,[also to little fiona] and strength to fight the good fight and one day walk away the WINNER!
    Lots of love Pen

    • Fiona says:

      Dear Pen, I’m so glad you are doing lots of art, it truly is a wonderful way to just even ‘breathe’ I think. When I manage to do it I always feel better.
      I do feel sad. I feel like I was a bit of a guinea pig, and still am. I also feel like here in Australia we are SO far behind in terms of understanding and treatment for eating disorders, AND for trauma. A lot of the time I feel like we are still in the 1980′s when it comes to eating disorders. Given how many lives it takes, this is terrifying.
      I hope so much things only get better for you, you are a very special girl xxx

      • ziggy40 says:

        Fi, frustrating as it is , that Australia is way behind. I wouldn’t be able to get as far without this really open, compassionate therapist, he’s text LOTS of words of encouragement even over the festive season which is big trigger for me. I really couldn’t speak more highly of any therapist. My doctor is another matter , so I really just get meds from him. I have had to go though a lot of really damaging therapy to find him, he’s gentle that trusting anyone, especially the ‘health care people ‘ is really hard. I wish for you to find someone that you can learn over time to trust. Please remember YOU are worth this, yes I know your negative self disagrees, I’m talking to your beautiful heart, and compassionate soul. Sending positive LOUD thoughts your way!! ….lol

        • Fiona says:

          I don’t know where I would be either, without the people who are behind me. I’m so glad you have a therapist who is so compassionate and caring. It makes a huge difference. I so know what you mean about many professionals just making you feel like a number.
          I think I’ve finally found the person who is going to help me with therapy, I mean really go on that gjourney with me.. I think :)
          Love and hugs xxx

        • ziggy40 says:

          Smiling to hear you have someone who is willing to walk with you,
          I’m with you, clapping you on , from the side lines!!..lol

      • ziggy40 says:

        Just wanted to also remember those I’ve lost mostly as a result of being judged and totally misunderstood ! I work as hard as possible in trying to recover in part to honor those sisters and brothers who could hold on no longer! Stay strong , you are a warrior,a survivor, I believe will one day thrive!!! ….lol

  7. While I’m a bit sad that you’ve been feeling unwell and have had to cut back on your activities…I think you probably did too much at once…so good to just do one thing maybe at a time. It sounds promising that your new counselor seems to understand and is connecting with you..For that I am very happy… Do take care Fiona…thinking of you always…Diane

  8. Greta says:

    I know! Just everything you’ve written here – I know! I live it too! Ok, maybe not. But reading all of it – I feel the stings, I understand the desire and the pain – I know!!
    On the other hand I’m happy, for you living – maybe not your best, but still. Sending you my million smiles and hugs an kisses and wished to continue on. To be. Happy.
    xoxo

    • iamnotshe says:

      What Greta said. … and everyone else here! XOXOX MEL

    • Fiona says:

      We all have it in common, in our own ways – this endless struggle. Or, I hope, not endless forever. We have to remember those we KNOW who ARE recovered – keep thinking of them every time we wonder if we will ever, ever be free of it. Living better, is always better than not living at all. That’s something I hang on to. And the more we just keep on living better, living the best we can – the more chance we have of one day being BETTER. If that makes sense?
      love you and hugging you so hard. You are so precious xx

  9. Kath says:

    Fi, I’m very very happy for you that you’re getting to work on the “real” issues with your new counsellor, and that you seem to get along with her so well! Having a good relationship with your counsellor is so important for opening up and getting through to things!

    I very much second that the wish to be thin is not what’s at the root of an ED. For me, as I’ve understood just very recently, the main purpose was vanishing (okay, that’s related to being thin, but not to look better but just to disappear) and erasing my feelings. So what I have to learn is that it’s okay to occupy some space and how to deal with emotions. Quite the task. :D

    Sending loving thoughts and hugs your way!

    • Fiona says:

      Thank you so much, Kath. I hope you are feeling better than you were the other day. I’ve been thinking of you and holding you in my heart.
      I do understand the ‘wanting to dissappear’ thing – that is ME too. It’s not about being thin, it’s about being too much, trying to obliterate ourselves. It’s a huge difference.
      Getting all caught up in the ‘thin’ stuff, concentrating on the numbers and the calories and the weights and the foods and all that crap – very good distraction. And as long as we focus on that, we distract ourselves and those trying to help us from what is really wrong.
      Thank you so much for your compassion and your support, my friend xxx

  10. Fiona says:

    Hello everyone, I just wanted to say thank you for your comments – I haven’t been able to answer them yet but you are all important to me and I really appreciate your words. I’ll get back to you soon – and thank you for reading.
    Much love xx

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